We got some bad news about Tessa this week.
In the hospital they found that Tessa has a genetic metabolic disorder called "MCAD deficiency". This means that her body is unable to get energy from breaking down fat.
If she doesn't eat for a while (because she is sick or sleeps too long), and thus doesn't get enough carbon hydrates, her organs will fail.
This means that every time she's going to be sick we have to go to the hospital for treatment.
She will be on a carbon diet and will have to go for regular check-ups in the hosptital for the whole of her life.
I'm sorry Tessa is having this difficulties. She is a wonderfull baby. I wish you common sense to be able to control what doctors will ever do for Tessa. They can do a lot.
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